Dataset de-identification levels
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These categories indicates the level of de-identification that has been applied. The possible values are:
| id | name | description | source |
|---|---|---|---|
| 0 | Not known | No clear information available about the de-identification, if any, applied to the data. | ECRIN |
| 1 | No de-identification | Confirmed that no de-identification measures have been applied to the data set. | ECRIN |
| 2 | De-identfication applied | Some de-identification measures have been applied. Details should be described in comments and / or indicated in the linked boolean fields, or in separate documents. | ECRIN |
| 3 | De-identfication applied, primary outcomes re-assessed | Some de-identification measures have been applied and are described. In addition the data has been re-analysed against the primary outcomes and the results described. | ECRIN |
The categories are used alongside 5 more specific boolean data points that allows specific de-identification measures to be indicated, and a textual description that should be used to give details of the de-identification process (or reference a URL or other data object where such details can be found). The 5 specific data items are:
- Direct Identifiers removed?
- US HIPAA de-identification criteria applied?
- Dates rebased or replaced by integers?
- Narrative text fields removed?
- k-anonymisation achieved?
