Difference between revisions of "Background and History"
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===Initial Planning, 2016-2017=== | ===Initial Planning, 2016-2017=== | ||
Beginning in 2016, ECRIN's work within the H2020 [https://www.corbel-project.eu/home.html, '''CORBEL'''] project, in particular the leadership of a group looking at 'data sharing' issues within clinical research, highlighted the need to improve the FAIRness of clinical research data. It became clear that if researchers made more and more data objects available to others, as they were being encouraged to do, those objects would often be in a wide variety of places and available under a wide range of conditions. Even discovering where the various data objects associated with a study were located might become difficult and time-consuming, and therefore costly, and once found there would be the additional problem of understanding - because many such objects would only be available under controlled access - how to access them. The concept of a 'metadata repository', that could bring all this discoverability, access and provenance (DAP) metadata together, evolved out of these concerns.<br/> | Beginning in 2016, ECRIN's work within the H2020 [https://www.corbel-project.eu/home.html, '''CORBEL'''] project, in particular the leadership of a group looking at 'data sharing' issues within clinical research, highlighted the need to improve the FAIRness of clinical research data. It became clear that if researchers made more and more data objects available to others, as they were being encouraged to do, those objects would often be in a wide variety of places and available under a wide range of conditions. Even discovering where the various data objects associated with a study were located might become difficult and time-consuming, and therefore costly, and once found there would be the additional problem of understanding - because many such objects would only be available under controlled access - how to access them. The concept of a 'metadata repository', that could bring all this discoverability, access and provenance (DAP) metadata together, evolved out of these concerns.<br/> | ||
Revision as of 12:49, 28 October 2020
Initial Planning, 2016-2017
Beginning in 2016, ECRIN's work within the H2020 CORBEL project, in particular the leadership of a group looking at 'data sharing' issues within clinical research, highlighted the need to improve the FAIRness of clinical research data. It became clear that if researchers made more and more data objects available to others, as they were being encouraged to do, those objects would often be in a wide variety of places and available under a wide range of conditions. Even discovering where the various data objects associated with a study were located might become difficult and time-consuming, and therefore costly, and once found there would be the additional problem of understanding - because many such objects would only be available under controlled access - how to access them. The concept of a 'metadata repository', that could bring all this discoverability, access and provenance (DAP) metadata together, evolved out of these concerns.
The initial task was seen as the creation of a metadata schema with the creation of the first version of a metadata schema for clinical research data objects[1], with the focus very much on discoverability, access and provenance metadata.
The XDC project and a pilot MDR, 2018-2020
The European Open Science Cloud and the MDR, 2020 onwards
The current progress of the project within EOSC life is tabulated in Progress (EOSC Life)
Notes
- Jump up ↑ Canham, S., Ohmann, C. A metadata schema for data objects in clinical research. Trials 17, 557 (2016). https://doi.org/10.1186/s13063-016-1686-5
