Difference between revisions of "Sources and Contributors"
(Created page with "==Data Sources== ==Contributing Organisations== ==Funding==") |
(→Data Sources) |
||
| Line 1: | Line 1: | ||
==Data Sources== | ==Data Sources== | ||
| − | + | At the moment (01/2021) the MDR obtains study data from: | |
| + | * Clinical Trials.gov (CTG) (https://clinicaltrials.gov/) | ||
| + | * The European Clinical Trials Registry (EUCTR) (https://www.clinicaltrialsregister.eu/) | ||
| + | * ISRCTN (http://www.isrctn.com/) | ||
| + | * The WHO ICTRP (https://www.who.int/ictrp/en/) | ||
| + | These sources span all the study registrations within the WHO's global network of registries. Data is downloaded directly as XML files from the CTG web site, 'scraped' from the web pages of the EUCTR and ISRCTN, and downloaded as CSV files from the WHO ICTRP. The data from the WHO is used only for those studies not in CTG, EUCTR and ISRCTN. Studies in more than one registry are only entered once in the system (using the first registry entry encountered). | ||
| + | The intention is to increase the amount of individual trial registries used as sources (because the data available usually includes more detail than in the ICTRP data), while retaining the CSV downloads from the WHO for those registries that cannot be included directly. It is also planned to use listings of observational studies and / or post authorisation studies when they are available (e.g. from EU PAS). | ||
| + | The study data provides study entries for all studies registered globally, with the data up to 7 days behind the source registry. It also provides linked 'data objects' in the shape of trial registry entries and results entries, and – where listed in the original registry entry – references to other documents such as protocols, information sheets, and CSRs, and a limited number of datasets – though these are usually not publicly available. It also provides links to journal articles. | ||
| + | The sources used chiefly for data object metadata are: | ||
| + | * PubMed (https://www.ncbi.nlm.nih.gov/pubmed/) | ||
| + | * BioLINCC (https://biolincc.nhlbi.nih.gov/home/) | ||
| + | * Yoda (https://yoda.yale.edu/) | ||
| + | XML files can be downloaded directly from PubMed, but data must be scraped from the other two web sites. The intention is to significantly expand the number of data repositories repositories used as sources of material. | ||
==Contributing Organisations== | ==Contributing Organisations== | ||
Revision as of 13:27, 13 January 2021
Data Sources
At the moment (01/2021) the MDR obtains study data from:
- Clinical Trials.gov (CTG) (https://clinicaltrials.gov/)
- The European Clinical Trials Registry (EUCTR) (https://www.clinicaltrialsregister.eu/)
- ISRCTN (http://www.isrctn.com/)
- The WHO ICTRP (https://www.who.int/ictrp/en/)
These sources span all the study registrations within the WHO's global network of registries. Data is downloaded directly as XML files from the CTG web site, 'scraped' from the web pages of the EUCTR and ISRCTN, and downloaded as CSV files from the WHO ICTRP. The data from the WHO is used only for those studies not in CTG, EUCTR and ISRCTN. Studies in more than one registry are only entered once in the system (using the first registry entry encountered). The intention is to increase the amount of individual trial registries used as sources (because the data available usually includes more detail than in the ICTRP data), while retaining the CSV downloads from the WHO for those registries that cannot be included directly. It is also planned to use listings of observational studies and / or post authorisation studies when they are available (e.g. from EU PAS). The study data provides study entries for all studies registered globally, with the data up to 7 days behind the source registry. It also provides linked 'data objects' in the shape of trial registry entries and results entries, and – where listed in the original registry entry – references to other documents such as protocols, information sheets, and CSRs, and a limited number of datasets – though these are usually not publicly available. It also provides links to journal articles. The sources used chiefly for data object metadata are:
- PubMed (https://www.ncbi.nlm.nih.gov/pubmed/)
- BioLINCC (https://biolincc.nhlbi.nih.gov/home/)
- Yoda (https://yoda.yale.edu/)
XML files can be downloaded directly from PubMed, but data must be scraped from the other two web sites. The intention is to significantly expand the number of data repositories repositories used as sources of material.
